Rusk, Howard, 57. S. Scherer, 1988a, xv. Scherer, 1988b, xv. Scherer, 1990, xv. Scherer, 1991b, 127. Scherer, Frisina, 1998, 123. Scherer, Marcia, viii, x, xi.
Index A
C
abandonment of devices, ii, xiii, xiv, xvii, 117–119, 139, 182 reasons for, 118 accessibility, 50, 77, 138, 141, 152, 154, 183 accomplishment, 74, 76, 78, 82, 85, . See also achievement achievement, 74, 85, 96–99, 107, 114, 115, 126, 128, 131, 184. See also accomplishment activities of daily living (ADL), 40, 42, 44 adapted equipment, 16, 21, 37 aging, 92, 94, 128, 170 alcohol. See substance abuse American Coalition of Citizens with Disabilities, vii Americans with Disabilities Act (ADA), ix, 40, 45, 51, 54, 75, 152, 154, 178, 183 anger, 2, 11, 97, 99, 106, 108, 171, 172 Ann, 87–92, 128, 169–170 anxiety, 88, 97, 99, 112, 127, 128 augmentative communication, 33, 34, 35 autonomy, xi, 66, 76, 78, 85, 137-138 Axelson, Peter, xi, xii
cancer, 156, 170 canes, 40, 42 Chris, 55–59, 62, 64, 71, 74, 110, 130, 151, 163, 173, 175, 176 Chuck, 1-4, 5, 9, 10, 11, 16–19, 20, 27–28, 38, 45, 51, 65, 66, 72, 79, 94, 105, 120, 124, 129, 130, 132, 152, 172, 176 civil rights, 31, 49, 54 Civil Rights Act (1964), 49 Civil War, 46 classification of assistive devices according to environment of use, 41 according to purpose for use, 39–41 according to the functional limitations they address, 41–44 Cody, 36, 37, 38 computers, vii, ix, x, xv, 15, 18, 21, 29, 30, 33–36, 37, 38, 51, 54, 55, 62, 68, 72, 94, 103, 127–129, 145, 182 congenital vs. acquired disabilities, 27–28 coping and non-coping, 113–115 coping, ways of, xvii, 97, 111, 131, 171 cost-effectiveness, 85, 133, 137 counseling, xiv, 2, 55, 70, 78, 131 Creech, 1990, 125 Creech, Dijckers, 1995, 123 crutches, 42 Cushman, Scherer, 1998, 109
B Baum, 1982, 26 Bennet, 1992, 69 Benshoff, Janikowski, Taricone, & Brenner, 1990, 108 Bjorck-Akesson, 1990, 125 Blissymbolics, 29 Bouvia, Elizabeth, 86 Bowe, Frank, vii, x Brian, 11–16, 18, 19–20, 27–28, 38, 45, 58, 62, 64, 72, 79–81, 105, 111, 132, 145–151, 154 Brightman, 1984, 64 Brown, 1996, 141 Butch, xiii, 59–65, 69, 71, 72, 79, 111–113, 115, 130, 152–154, 170–171, 172, 176, 178
D Davis, Bette, 144 dependence, 69, 79, 82, 84, 106, 115 depression, 3, 16, 19, 63, 69, 70, 93, 94, 97, 100, 106–109, 111, 131, 132, 156, 178 despair, xvii, 96, 113, 114, 178 dignity, 79, 81 Disabled in Action, 49 Dragona, 1985, 54 drugs, 154, 178
214 Living in the State of Stuck Dudek, 1985, 137
E economic influences, 45, 47, 48, 49, 54 Education for All Handicapped Children Act (1975), 49 employment, viii, 23, 24, 47, 49, 51, 70, 74, 91, 94, 137, 151, 153 Enders, 1984, 128 environmental accommodations, 66, 75, 76, 85, 124 environmental control system (ECS), 17, 38 Evans et al., 1985, 86, 87 Express I, 34 Express III, 29, 30, 34, 35
F funding, 37, 48, 51, 52, 136, 139, 164, 167, 179
G Gage & Berliner, 1992, 98 Galvin & Scherer, 1996, 39 Garris, 1983, 173 Gilligan, 1992, 140 Greer, 1986, 108
H Hansell, 1974, 76, 104 Harris Poll, 1991, 68 Hartley, L.P., 45 Heinemann, 1991, 108 Heumann, Judy, 49 high-tech, 17, 19, 28, 31, 38, 39, 40, 55, 57 hospital, 2, 10, 11, 13, 23, 49, 52, 56, 93, 152, 155–156, 168, 169
I identity, xi, 36, 76, 78, 83, 85, 95, 100, 101, 126, 132, 164, 173, 175 independence, xi, xvii, 7, 11, 12, 14, 15, 18, 24, 27, 39, 40, 42, 49, 67, 69–72, 74, 78–81, 84, 85, 91, 92, 104, 111, 115, 118, 119, 127, 130, 137, 146, 170, 174, 175 Independent Living Center, 29, 50, 55, 70, 77, 92, 139 Independent Living Movement, 49, 66, 78 individual deficit modification, 75 Individuals with Disabilities Education Act (IDEA), ix, 45
Industrial Age, 45, 46 institutions, 20, 23, 29, 46, 50, 53, 57, 66, 72, 78, 84, 85, 125 interdependence, 78, 79, 81, 182 intimacy, xvii, 76, 78, 81, 104, 105
J Jeremiah, 36, 38 Jim, 20–25, 27–28, 36, 65, 79, 82–85, 99-102, 102–106, 114, 144–145, 154, 163, 173, 175 Johnson, Lyndon, 177
K Kaplan & Questad, 1980, 67, 69 Ken, 70, 76–79, 84, 104–108, 110, 111, 112, 130, 132, 154–157, 163, 167–169, 173, 176, 178 Kevorkian, Dr. Jack, 86 Krause, 1999, 109 Krause, Crewe, 1987, 6 Krause, Crewe, Kemp, 1999, 109 Kubler-Ross, 1969, 107 Kutner, 1969, 177
L Lange, 1995, 36 LaPlante, Hendershot, & Moss, 1992, 37 Lathrop, 1997, 49 Linda, 87–92, 128, 169–170 Littrell, 1991, 127 Lofstrand crutches, 43, 57 loneliness vs. isolation, 126-127 low-tech, 21, 28, 38, 39, 40
M Maggie, 28–31, 34, 38, 45, 46, 48, 51, 65, 72, 79, 92–94, 105, 112, 129, 134, 136, 151, 153, 163 mainstreaming, xv, 49, 53, 54 manual communication boards, 29, 30, 34, 35, 40, 88 Maslow, 1954, 98 Maslow’s motivational needs hierarchy, 98–99, 104, 115 Maynard & Muth, 1987, 86 Medicaid, 94, 117, 136, 153, 169 Medicare, 117, 136, 153, 167 Milieu factors, 115, 120, 123–127, 138, 163 Milton, John, 74
Index 215 mobility, xvi, 26, 40, 44, 77, 88, 119, 137, 138, 146 mobility, assistive devices for, 42–44 motorcycles, 1, 2, 11, 14, 106, 146 mouthstick, 2, 17, 18, 37, 40 Musselwhite, 1990, 125
N National Housing Act Amendments (1975), 49 National Science Foundation, xv, xviii National Spinal Cord Injury Association, 106 need satisfaction, 96, 116 New York State Senate Select Subcommittee[...], 19, 25 New York Times, 1990, 67 no-tech, 38, 39, 42 Nolan, 1987, 33 Nolan, Christopher, 33, 34 Nosek, 1990, 79, 175 Nosek, Fuhrer, & Potter, 1995, 87
O Orwell, George, 55
P passivity, 69, 70, 84, 100, 109, 114, 115, 130 peer support, xi, 67, 125, 163, 175–177 person-centered perspective, 76, 77, 85, 95, 116, 117, 170, 182 personal assistance, 79, 81, 87, 88, 89, 92, 174 availability of, 124, 169 need for, 79 personal assistants, 10, 16, 19, 78, 79, 91, 97, 131, 146, 175, 180 personal attendants. See personal assistants Personal Capacities Questionnaire, 74 Personality factors, 71, 120, 127–132, 138, 163 Phillips & Zhao, 1993, 118 pressure sores, 10, 110, 156, 157 privacy, xvii, 10, 81, 88 prosthetics, 38, 46, 119, 137–138 Public Law 100-407, 44 Public Law 100-819, 37 Public Law 101-336, ix Public Law 101-431, viii Public Law 101-476, ix
Public Law 113, 48 Public Law 236, 47 Public Law 333, 48 Public Law 565, 48 Public Law 93-112, 78 Public Law 94-142, 49 Public Law 95-603, 78 PWD experience, 64, 65, 70, 72, 96, 97, 111–116, 175, 177, 178, 184
Q quality of life, xi, xiv, xv, xvi, 30, 39, 58, 74–76, 84–89, 94–96, 115–119, 127, 143, 154, 162–163, 170–171, 175, 178–179, 182–184
R Rahimi, 1981, 75 reachers, 15, 19, 44 Rehabilitation Act Amendments (1974, 1978), 49 Rehabilitation Engineering and Assistive Technolog, 44 rehabilitation services, 47, 48, 67, 100 rehabilitation success, xvi, 30, 58, 63–64, 67, 70–74, 97, 111, 115 Richardson & Poulson, 1994, 180 Richmond, 1996, 36 Rintala, Merso, Hudner-Hall, 1999, 86 Roberts, Ed, 49 Rohe & DePompolo, 1985, 108 Rohe & Krause, 1992, 132 romantic involvement, xvii, 3, 16, 19, 100, 103, 104–106, 147 Root, 1970, 98 Rousseau, Jean-Jacques, 158 Rush, 1985, 26, 105 Rusk, Howard, 57
S Scherer, 1988a, xv Scherer, 1988b, xv Scherer, 1990, xv Scherer, 1991b, 127 Scherer, Frisina, 1998, 123 Scherer, Marcia, viii, x, xi Scofield, 1999, 86 Scott, 1969, 65 self-esteem, xi, 80, 85, 129, 143, 163, 173, 177 sexuality. See romantic involvement
216 Living in the State of Stuck sit-skiing, 15, 16, 41, 146 Skow, 1987, 68 Smith, Frieden, & Richards, 1995, 78 Social Security Act, 47 Social Security Disability Amendments (1980), 49 Soldier’s Rehabilitation Act (1918), 47 spastic paralysis, 9, 14 Spenser, Edmund, 1 Starkey, 1967, 69 Stoll, 1983, 65 substance abuse, 97, 100, 108, 154–156, 178
T TDD, ix, 41 Technology factors, 120, 132–138, 138
U
Vash, 1981, 96 Vocational Rehabilitation Act (1920), 47 Vocational Rehabilitation Act Amendments (1943), 48 Vocational Rehabilitation Amendments (1973), 49
W walkers, 43 Welch, Lobley, O’Sullivan & Freed, 1986, 7 Whiteneck et al., 1992, 87 Willmuth, Holcomb, 1993, 141 wordboard. See manual communication board World War I, 47 World War II, 47, 48 Wright, 1960, 113
Ulicny, White, Bradford, & Mathews, 1990, 175 United Cerebral Palsy Association, 38, 94 usability hierarchy, 180
Y
V
Zapf, 1998a, 17 Zapf, 1998b, 18 Zola, 1984, 82, 174, 175
vans, adapted for wheelchair users, 14, 18, 22, 27, 36, 40, 43, 62, 76, 103, 153 Varela, Rita, vii, viii, x Technology-Related Assistance for Individuals with Disabilities Act, ix, 45, 164 technophobia, 127–128 Television Decoder Circuitry Act (1990), viii temperament, 95, 97, 117, 131 Thomason, 1990, 127 Time [magazine], 1987, 68
Yarkony & Chen, 1996, 10 Yeats, William Butler, 96
Z
