30 Oct 2013 ... Life Story Work is a con&nuous process ... Nov 2012‐March 2013 programme
across care homes, housing ..... Programme Start October 2012.
Symposium Demen-a‐friendly communi-es: How life story work can help people with demen-a to remain connected with their communi-es
www.lifestorynetwork.org.uk © LSN (CIC) 2013
Welcome and Introduc/on Scene se2ng The Life Story Network ‐ who we are A network of individuals and organisa3ons dedicated to sharing knowledge and experience of life story work. We believe in Human Rights based person centred care.
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Agenda • What is life story work? • Life story work and demenAa‐friendly CommuniAes • SupporAng the housing sector • Using life stories in the home care sector • Pass on the Memories – Everton in the Community Trust • Family Carers MaOer™
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What is Life Story Work? • Life Story Work is a con/nuous process • It involves looking back on the past and forward to future hopes • Stories of what people CAN do, what they were good at, skill and ability are important to capture • ConversaAons are about good communicaAon and building rapport
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Demen/a‐friendly communi/es Links to naAonal iniAaAves Responding to the Prime Minister’s Challenge Responding to what local residents are telling us Building a beOer understanding of demenAa within the whole ageing‐well agenda • Taking a ‘life‐wide’ approach and offering incenAves to change • • • •
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Your Community MaGers™ • Delivered DH funded Your Community MaGers™ • Nov 2012‐March 2013 programme across care homes, housing and home care to leaders and front line staff, family carers, volunteers and young people at risk of exclusion. • 153 people trained across 11 organisaAons, • Housing sector Target 40 – trained 74 i.e. 48 % – Front line staff, Family carers, volunteers,
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Suppor/ng the Housing Sector Polly Kaiser, Life Story Network Jane Mindar, Riverside Housing Group
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Introduc/on
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What we did Feedback from the programme Why suppor3ng the housing sector is important Next steps
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Riverside and Life Story Network A Partnership that Works!
Jane Mindar
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Older People in the UK • Unsuitable properAes combined with a cultural reluctance to move to more appropriate property – move when they have to • The effect of isolaAon on older people – levels of which remain the same for past 6 decades with nothing being done to tackle it • 1 in 5 pensioners living below the poverty line • Increases in cost of living – heat or eat • Number of people living with demenAa is increasing • Lack of access to independent advice services • 15 to 20% of older people are considered to be frail and living alone
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Older People – Out In The Cold?
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LiveTime – A New Model of Support in the Community
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• LiveTime is a naAonal pilot project – started in Dec 2010 • Community ‘hub’ approach which uses a community facility (community centre or similar) or communal faciliAes in a sheltered scheme • LiveTime will look to develop a blueprint for supporAng Riverside’s older people • 14 Hubs covering 6200 households • A peripateAc service which incorporates the provision of social opportuniAes
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Working with Life Story Network • Life Story Network (LSN) has delivered training to LiveTime team, other housing staff and our tenants • LSN delivered a training session to 30 older people at our conference in Liverpool in May this year • 2 regular memory cafes in Liverpool with input from tenants • Helping housing staff to communicate more effecAvely • We are working 1 to 1 and in groups with people • A community based approach
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Registered Social Landlords (RSLs):
‘bringing together the wider community and crea3ng demen3a friendly communi3es’ ‐ using our approach to life story work as a vehicle, we wanted to facilitate and develop the capability and capacity of local communiAes to improve their support to people with demenAa and families by working with family carers and volunteers, including younger people;
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Housing and Home Home : Old English “Ham” dwelling, house, Village • Throughout the HAPPI visits, the importance of a sense of belonging to a neighbourhood was evident. • Our capacity to enjoy it will be undermined if we feel isolated or insecure. • Such feelings increase with age, especially if we are lei alone aier the death of a partner. • Remaining ac/ve in the context of a community, in a neighbourhood we know, is crucial to our quality of life and how we feel about the future. • Connec/ons with the wider community are also cri/cal.
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Housing and Home
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“Neighbourhood is a powerful determinant of housing choice ‐ as important as the home you live in. Alongside the obvious things – safety and security, convenience, loca3on, affordability – neighbourhood is about familiarity and personal iden-ty, which people reflect on through place.” Karen Croucher, Researcher, Centre for Housing Policy, University of York in HAPPI report
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Preven/on and Well‐being
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“Individuals who are socially isolated are between two and five -mes more likely than those who have strong social 3es to die prematurely. Social networks have a larger impact on the risk of mortality than on the risk of developing disease; that is, it is not so much that social networks stop you from geOng ill, but that they help you to recover when you do get ill.” (Marmot, 2010)
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Preven/on and Well‐being
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Important factors affec/ng social well‐being amongst tenants were: • Adequately funded acAviAes that cater for a range of interests and abiliAes • OpportuniAes to develop and maintain a social life • The involvement of interested parAes at an early stage, to integrate housing schemes with the local community • Restaurants and shops as venues for social interacAon • Care and support services outside core hours of work
Evans, S and Vallelly, S (2007)
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Feedback
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“This training helps with ensuring that the wider community has a beDer understanding about the issues people with demen-a face and that they have interes-ng back stories to tell, that may have similari-es with our own.”
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Feedback
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• “I found it an amazing experience and feel much beQer equipped to offer my help and support to anyone with demen3a in the future.” • “Life stories encourage people to listen and encourage communica3on.” • “I am feeling more confident in how to approach a person with demen3a.” • “My understanding of demen3a is much improved.” • “I am leaving feeling more confidant to start conversa3ons with older people.” • “Made me realise I would like to volunteer my skills & know more about demen3a.”
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Great Opportuni/es With the appropriate training and support, front line housing staff are well placed to: • Provide face to face health checks • Spot the early signs of demen/a in individuals, • Provide informaAon and advice about local services • Promote meaningful rela/onships and social connec/ons among residents and the wider community
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Why is it Important?
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The housing sector can and does play a pivotal role in the development of age inclusive and demen/a‐ friendly communi/es
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The Future • ConAnue with a valuable partnership to deliver an approach for housing • Reduce the ‘scare factor’ by educaAng the community • Look at LSN as part of an holisAc approach to developing demenAa friendly communiAes
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The Future Housing staff are extremely well rooted in their local communiAes and command a high degree of trust and respect among their own tenants, as well as with other local care and support networks.
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Suppor/ng The Home Care Sector
Anna Gaughan, Life Story Network Debbie Severns, Bluebird Care Hazel Shimmin, Bluebird Care www.lifestorynetwork.org.uk
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Na/onal Context ‐ The Home Care Sector • 400,000 people in the UK living with demen/a but not yet diagnosed – 60% of people are receiving home care with some form of demen/a • UKHCA – (United Kingdom Homecare Associa/on) professional associa/on represen/ng homecare providers – published their UKHCA Demen/a Strategy in response to the PM’s Challenge on Demen/a & Care and Support Compact – Member of the Na/onal DAA – Commitment to providing the right care, in the right place and at the right /me, responding to what people with demen/a want – Key strategic partner in the YCM project
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Quality of Home Care – The Next Na/onal Crisis! EHRC – Close to Home Report ‐ an inquiry into older people and human rights in home care 2011 – Lack of care with people’s emo/onal and physical wellbeing – evidence of physical, emo/onal and financial abuse – Neglect of personal care – Lack of autonomy and choice ‐ inflexibility (e.g. Daily rou/nes, /mes of visits, number of carers, bed /mes) – Lack of respect for privacy (turn over of staff, 32 carers in 14 days!) – Lack of personal security (blind lady having to leave the door unlocked) – Insufficient /me for visits – Lack of respect for diverse needs (e.g. Homophobia)
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Quality of Home Care
Quality of Home Care – Home Care Summit “Ministers fear that the next big scandal could be home care, which has been labelled as being in crisis”. “Care Quality Commission found a quarter of homecare inspected is failing to meet basic standards, leaving service users feeling "vulnerable and undervalued". The worst examples have seen vulnerable people receiving a 10‐minute visit, being leI unfed, unwashed and lying in the dark because they are unable to get out of bed”.
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Quality of Home Care – Home Care Summit • Survey by the Guardian’s Social Care Network & DH – Summer 2013, published 30th Oct 2013 • “The biggest problem doesn’t appear to be frontline homecare workers – 46% people reported a posi/ve experience with individual care workers”. • Three key issues influencing the quality of home care – Insufficient /me – Pay and condi/ons – Insufficient quality training and support
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Your Community MaGers™ – Home Care • Acknowledgement that the homecare sector is facing many challenges • Life story work was cited as example of good prac/ce in the Close to Home Report – comba/ng poor care and enhancing the quality of rela/onships • Building on this to target and work with home care providers (selected via UKHCA) • Iden/fied two providers in Merseyside, one of which is Bluebird Care (Wirral) • Debbie Severns, Care Manager • Hazel Shimmin, Care Worker
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Example of Good Prac/ce Bluebird Care – Wirral • Why did you want to become involved? • How did you make it successful and sustainable? – Impact on individual person – example of outcomes – Impact on organisa/on – what has changed? – Impact on key care staff ‐ personal impact & valuing her role and contribu/on
• Next steps.....
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Bluebird Care – Wirral Benefits to the individual
How did we make it successful?
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• Allocated key worker • Liaised with families • Implemented life story books • Worked with families and individuals
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Builds rela/onships Individual feels included Peace of mind Reassurance Enjoyment Distrac/on Eases transi/on to residen/al care/hospital./ other care provider
Bluebird Care – Wirral
Benefits to care workers • BeGer understanding • Increased self esteem • Improved rela/onships
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Benefits to the company • Confident work force • Improved staff communica/on & leadership • Improved staff morale • Improved customer service • Increased contribu/on to the company • Staff advancement 33
Bluebird Care – Wirral • Benefits to the community – Health care professionals – Reduces the need for some GP visits/ District Nurse involvement
• Impact on the organisa/on – Having a beGer understanding of individuals with demen/a, makes
the role we have to play in people’s lives much easier
• Challenges we face
– Council commissioned services short call /mes
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Learning & Observa/ons • Care staff were – CommiOed, dedicated and enthusiasAc – Skilled at listening to obtain people’s stories in their short interacAons and understood that this was a way of providing beOer care for them – An invaluable link for people who did not have family carers at points of transiAon, such as admission to hospital or into residenAal care – A very valuable and untapped resource in terms of integrated care.
• More investment in training and development for individual home care workers is required • Life story work should underpin the way in which Local AuthoriAes assess the needs, wishes and preferences of individuals requiring home care • Radical change required to address the way home care is commissioned – based on need & quality of life not on Ame slots
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Feedback “How I can use this (life stories) in my workplace, lots of ideas, made me think differently.”
“That I know more than I thought I did and things you think are not so important really are.”
“That people with demen3a are s3ll human beings with an illness.” “I will be looking at changing my care planning systems.”
“How important it is to know the person, not the problem.”
“It will enable me to give people a more person centred care rather than use a medical model.”
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“Pass on the Memories” Henry Mooney – Everton Football Club Community Engagement Officer
[email protected] Tel: 0151 530 5253 Everton in the Community • Goodison Park • Liverpool • L4 4EL
History of Programme • Identified reasons for programme • Programme Start October 2012 • Official Launch January 2013 • Partnerships with Merseycare, Heritage Lottery and Clinical commissioning group • Project advisory group including Life Story Network • Everton Football Club Dementia awareness day – 28th March and 30th March 2013 • Invitation to House of Commons to meet with Norman Lamb (Minister of State for Care and Support) • Steve Rotherham (MP for Walton Liverpool) Parliamentary Address
Project Support and Interventions • Participant and Carer referrals • Induction to programme • External visits to football clubs and local historical places of interest • Physical and Mental wellbeing exercises that include chair based exercises, quizzes and indoor games • Reminiscence sessions with both football and general memorabilia • Visiting speakers and entertainers • Intergenerational workshops • Social Events • Training for volunteers in dementia awareness
Manchester Ship Canal Cruise
Everton Football Club
Intergenerational Workshop
Tranmere Rovers Football Club
Any Questions Henry Mooney – Everton Football Club Community Engagement Officer
[email protected] – Tel: 0151 530 5253
Family Carers MaGer™ Jean ToGie, Life Story Network Heather Self, Family Carer
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Some of My Favourite Things ‐ Joe Football ‐ Newcastle United
Fishing
My Garden Dominoes
Durham Gala
Sculpture in Memory of Washington Miners © LSN (CIC) 2013
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Important to Joe & His Family
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To be dressed in clean shirt, jumper or cardigan, socks and slippers
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Showered or bathed, electric or wet shaved each morning
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Warm and comfortable in his chair
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Regular fluids and meals, one sugar in his tea Joe has a good appeAte other than when unwell To be treated at all Ames with Dignity & Respect To be listened to as an individual, not as someone that has an illness
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To be listened to as an individual, not as someone that has an illness
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To have regular visits from his family and friend
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Joe needs help now with dressing
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Support when standing and transferring to chair & bed
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Joe loves company, encourage to be involved in all home acAviAes
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Support Joe in his world as he is now, enjoy his sense of humour and wonderful smile
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To involve him in conversaAon, help to reminisce about…………
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…….‘THE GOOD OLD DAYS’
Family Days Out
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80th Birthday
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Hi, I’m Joe
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Our Blue Eyed Boy We know a blue eyed boy Who means the world to us A caring sharing man Who never makes a fuss His life was not always easy He always has a smile That’s the reason we love him And sit and talk with him awhile His nephews and nieces are many Scattered here and there But when we meet we smile, and remember Our Blue Eyed Boy sitting in his chair. Tons of love Joe © LSN (CIC) 2013
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Feedback ‐ Carers “Found the day immensely valuable to recognise the person, focus on the posi3ves, their competencies & skills”.
“Involved Mum in family history but realised I was not asking the right ques3ons. Through life story work I learnt more about Mum & her feelings so a different conversa3on. Day 1 training changed my approach. Without this it wouldn’t have been Mum’s life. It gave me confidence to explore Mum’s feeling”.
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“A lot of posi3ves in M’s life rather than thinking of nega3ves”.
“My approach to S (husband) has changed – focus on posi3ves. Now I’ve learned more about him I didn’t know from his childhood and it’s brought us closer together”. Our rela3onship had started to suffer. Deeper rela3onship developed.
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Thank You ! Contact Details Web:
www.lifestorynetwork.org.uk
Telephone: 0151 237 2669 E‐mail:
[email protected]
TwiGer:
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@lifestorynetwork
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